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Ethics and information technology : a case-based approach to a health care system in transition / James G. Anderson, Kenneth W. Goodman.

Holman Biotech Commons R858 .A475 2002
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Format:
Book
Author/Creator:
Anderson, James G.
Contributor:
Goodman, Kenneth W., 1954-
Series:
Health informatics
Language:
English
Subjects (All):
Medical informatics--Moral and ethical aspects.
Medical informatics.
Medicine--Information services--Moral and ethical aspects.
Medicine.
Computer networks--Social aspects.
Computer networks.
Medical Informatics.
Ethics, Medical.
Medicine--Information services.
Medical Subjects:
Medical Informatics.
Ethics, Medical.
Physical Description:
xviii, 213 pages : illustrations ; 24 cm.
Place of Publication:
New York : Springer, [2002]
Summary:
This book presents 13 case studies illustrating ethical and social issues that arise from the increasing use of computers in medicine, nursing, psychology, pharmacy and the allied health professions. These case studies will inspire discussion to aid understanding of the subject.
Contents:
1 Introduction: Case Studies in Ethics and Health Informatics 1
2 The Business of Cyber Health Care 9
Health Services Online 14
Case 2.1 Shopping on the Web for Surgical Options 14
Case 2.2 Let the Buyer Beware 15
Case 2.3 Virtual Doctors 16
Case 2.4 Online Doctor Visits 16
Case 2.5 Litigious Patients 17
Case 2.6 Virtual Health Care Systems 18
Case 2.7 Online Coverage for Uninsured Consumers 19
Case 2.8 Smart Cards 19
Case 2.9 An Electronic Soapbox 20
Virtual House Calls 21
Case 2.10 Cyber Home Health Care 21
Case 2.11 The Virtual House Call 21
Case 2.12 Dial-Up Medicine 22
Case 2.13 Cybercare 23
Case 2.14 Avoiding Drug-Drug Interactions 23
Case 2.15 An Interactive Support Group for ALS 24
Case 2.16 Information and Support on the Internet 25
Case 2.17 Fear and Communication 25
Sale of Body Parts 26
Case 2.18 Internet Bids for a Kidney 26
Case 2.19 Sperm Bank Advertisements on the Internet 27
Case 2.20 Models' Eggs for Sale 27
Suicide on the Web 28
Case 2.21 Suicide Web Site 28
Online Medical Records 28
Case 2.22 Secure Medical Records on the Internet 28
Case 2.23 Cyber File Cabinet 29
Case 2.24 Medical Records on the Internet 29
Case 2.25 Medical Records Online 30
Case 2.26 Doctor Posts Patient Files on the Net 31
Pharmaceutical Products 31
Case 2.27 Drug Bazaar 31
Case 2.28 The Internet Diet Doctor 32
Case 2.29 Dispensing via the Internet 33
Case 2.30 Dying for Sex 33
Case 2.31 Internet Prescriptions 34
Case 2.32 Online Importation of Drugs to the United States 35
Case 2.33 Foreign Sales of Drugs on the Internet 35
Case 2.34 Online Auction for Pharmaceuticals 36
Case 2.35 Drug Database Sells Advertisements to Sponsors 37
Mental Health Services 37
Case 2.36 Diagnosing Depression by Computer 37
Case 2.37 The Cybercouch 38
Case 2.38 Counseling on the Internet 39
Cyberchondriasis 39
Case 2.39 Tingling Feet or MS? 39
Case 2.40 Munchausen Syndrome and Medical Record Hacking 40
Case 2.41 Munchausen Syndrome Online 41
3 Contents Consumer Health Information: Let the Viewer
Beware (Caveat Viewor) 47
Inaccurate Information 51
Case 3.1 Inaccurate Medical Information on the Web
Childhood Diarrhea 51
Case 3.2 Cancer Information on the Internet 51
Case 3.3 Internet Advice on Home Management of Feverish Children 52
Unverified Health Claims 53
Case 3.4 "Web Slippery with Snake Oil" 53
Case 3.5 The Growth of Unverified Health Claims 53
Case 3.6 Laetrile 54
Case 3.7 Fears of Aspartame 55
Case 3.8 Beware of Dangerous Medical Advice Online 55
Conflicts of Interest 56
Case 3.9 Web Site Sponsorship 56
Case 3.10 Promoting Products and Services 57
Case 3.11 Listing for Sale? 58
Case 3.12 Headache Resources on the Internet 58
Case 3.13 Professional Associations and For-Profit Web Sites 59
4 Privacy and Confidentiality 63
Breaches of Security 73
Case 4.1 Sex Doctor's Patient Files on the Web 73
Case 4.2 Medical Records Online at a University Medical Center 74
Case 4.3 Security Breach of a Hospital's Voice Mail System 75
Case 4.4 Access to an Electronic Medical Record 75
Case 4.5 Electronic Mental Health Records 76
Case 4.6 A Case of Mistaken Identity 77
Case 4.7 Confidential Medical Records on Used Computers 77
Case 4.8 E-mail Goes Astray 78
Inappropriate Use of Health Information 79
Case 4.9 Inappropriate Access to a Celebrity's Medical Record 79
Case 4.10 Patients Told They Had AIDS 80
Case 4.11 Medical Records for Sale 81
Case 4.12 Medical Care Database Information for Sale 82
Case 4.13 Credit Card Fraud 82
Case 4.14 Banker Calls in Loans of Cancer Patients 83
Case 4.15 Misuse of Public Health Data 83
Case 4.16 Integrated Health Care Systems 84
Case 4.17 Patients' Files Used for Obscene Calls 85
Case 4.18 Abortion Clinic Sues CompuServe 85
Case 4.19 Men Contract Syphilis after Meeting in an Internet Chatroom 86
Secondary Use of Medical Information 86
Case 4.20 Privacy of Pharmacy Data 86
Case 4.21 Tracking Consumers on the Web 87
Case 4.22 Release of Medical Information 88
Case 4.23 The Medical Insurance Bureau 89
Case 4.24 The Psychiatric Case Register 90
Case 4.25 Wellness Plan Files Used to Fight Employee Job-Related Injury Claims 90
Case 4.26 Dispute over Use of Medicaid Records 91
Case 4.27 Billing Data Released in Fraud Case 92
Data Sharing 93
Case 4.28 Creating a National Database 93
Case 4.29 Medical Web Site Faulted on Privacy 94
Case 4.30 Privacy on Cancer Support Web Sites 95
Case 4.31 Violation of the Privacy of Pharmacy Customers 96
Case 4.32 Marketing Prescription Drugs 96
Case 4.33 Inappropiate Use of Patient Pharmacy Data 97
Case 4.34 Doctor Shaken to Find Personal Data on the Web 98
Case 4.35 Data Mining 98
Rating Physicians 99
Case 4.36 Rating Physicians on Outcomes 100
Case 4.37 Physician Disciplinary Reports on the Internet 100
Case 4.38 The Wall of Silence 101
Case 4.39 AMA Fights for Control of Price Data 101
Protection of Patients' Privacy 102
Case 4.40 Confidentiality of Patient Data 102
Case 4.41 Legislated Restrictions on Access to Medical Records for Research 103
Hackers 104
Case 4.42 Beware: Hackers at Play 104
Case 4.43 Computer Engineer Sentenced 104
Case 4.44 University Tightens Computer Security 105
Privacy Online 105
Case 4.45 Uncovering Physicians' Online Identities 105
Case 4.46 CEO Sues Online Critics 106
5 The Challenge of Bioinformatics 113
Issues in Bioinformatics 117
Case 5.1 Computational Pharmacogenomics 117
Case 5.2 Genetic Information in Centralized Databases 119
Case 5.3 Computational Genomics and Intellectual Property 120
Case 5.4 Web-mediated Paternity Testing 120
Case 5.5 Errors in Genetic Databases 121
6 Evaluation: An Imperative to Do No Harm 123
Failure of Health Information Systems 131
Case 6.1 A Troubled Hospital Medical Information System 131
Case 6.2 A Borrowed Pharmacy System 132
Case 6.3 Problems with a Billing and Payment System 133
Case 6.4 Physician Resistance to an Internet Based System 134
Case 6.5 Unanticipated Consequences of a Physician Order Entry System 135
Case 6.6 Automation of Inefficient Processes 136
Case 6.7 Failure of a "Best of Breed" Information System 137
Case 6.8 "No OSCAR" 138
Case 6.9 An Unsuccessful Computerized Medical Record System 139
Case 6.10 An Abandoned Computerized Medical Record System 140
Case 6.11 The Effects of Computerizing Medical Records on Clinic Function 142
Case 6.12 Electronic Prescriptions 143
Case 6.13 Programming Error Results in Overpayment of Doctors 144
Information Systems That Harm Patients 144
Case 6.14 Malfunction of the Therac-25 144
Case 6.15 Failure to Integrate Information Systems 146
Case 6.16 Concerns about the "Bedside Assistant" 147
7 Online Challenges for Human Subjects Research 154
Clinical Trials 157
Case 7.1 Information Exchange as a Confounder 157
Case 7.2 Web Site with Patient Reports on HIV Treatment 158
Case 7.3 Promising Trial of New Drug Spurs Demand 159
The Doctor-Patient Relationship 159
Case 7.4 Alternative Protocols for Cancer 159
Case 7.5 Patient-Doctor Conflict Over the Appropriateness of a Therapy 160
Case 7.6 Protocol Shopping on the Internet 160
Research Ethics 161
Case 7.7 Mining Patient Records 161
Case 7.8 Snooping on Internet Chat Rooms 162
Case 7.9 Tracing Syphilis in Cyberspace 162
Appendices Ethical Standards for Health Web Sites 165
Appendix 1 HON Code of Conduct (HONcode) for Medical and Health Web Sites 166
Appendix 2 eHealth Code of Ethics 168
Appendix 3 TRUSTe's Consumer Privacy Protection Guidelines 176
Appendix 4 TRUSTe Model Privacy Statement 178
Appendix 5 Health Internet Ethics: Ethical Principles For Offering Internet Health Services to
Consumers 184
Appendix 6 Criteria for Assessing the Quality of Health Information on the Internet 191
Appendix 7 Principles Governing AMA Publications Web Sites 199.
Notes:
Includes bibliographical references and index.
ISBN:
0387953086
OCLC:
46936220

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