Down syndrome : visions for the 21st century / edited by William I. Cohen, Lynn Nadel, Myra E. Madnick.

Format:

Book

Contributor:

Cohen, William I.

Nadel, Lynn.

Madnick, Myra E.

Language:

English

Subjects (All):

Down syndrome.

Down Syndrome--rehabilitation.

Community Mental Health Services--trends.

Education, Special--trends.

Interpersonal Relations.

Patient Advocacy--trends.

Patient Participation--trends.

Medical Subjects:

Down Syndrome--rehabilitation.

Community Mental Health Services--trends.

Education, Special--trends.

Interpersonal Relations.

Patient Advocacy--trends.

Patient Participation--trends.

Physical Description:

xvii, 473 pages : illustrations ; 24 cm

Place of Publication:

New York : Wiley-Liss, [2002]

Summary:

Providing a comprehensive survey of the clinical, educational, developmental, psychosocial, and transitional issues relevant to people with Down syndrome, this book addresses the needs of family members, caregivers, and professionals alike. Edited in association with the National Down Syndrome Society, this up-to-date treatment incorporates the newest developments concerning sexuality, inclusion, transition into adulthood, and legislation, as well as a discussion of the Human Genome Project and the sequencing of chromosome 21.

Contents:

Part I Self-Determination

1 Understanding Self-Determination / Thomas Nerney 3

2 Economic Independence and Inclusion / Michael Morris 17

3 Playing the Housing "Game": People with Down Syndrome and Their Families Can Have More Control When It Comes to Housing / Kathleen H. McGinley Ph.D. 83

Part II Self-Advocacy

4 Having A Life / John Peter Illarramendi, Jeffery Mattson, Mia Peterson 107

5 Follow Your Dreams / Chris Burke 113

6 Life After High School / Joshua G. O'Neill 115

Part III Advocacy

7 A Vision for the Twenty-First Century: A Blueprint for Change / Stephanie Smith Lee 119

Part IV Role of the Family

8 The Gifts of Down Syndrome: Some Thoughts for New Parent / Martha Beck Ph.D. 137

9 A Personal Account / Siegfried M. Pueschel, M.D., Ph.D., J.D., M.P.H. 149

10 Being A Dad

As I Know It / Thomas J. O'Neill 155

11 The Sibling Relationship: Attending to the Needs of the Other Children in the Family / Susan P. Levine, M.A., C.S.W. 163

12 The Special Needs Program: Estate Planning for Families with Children with Disabilities / David A. Weingarten 173

Part V Health and Clinical Care

13 Pediatric Health Update on Down Syndrome / Len Leshin, M.D., FAAP 187

14 The Goal and Opportunity of Physical Therapy for Children with Down Syndrome / Patricia C. Winders, PT 203

15 Behavioral Concerns in Persons with Down Syndrome / Bonnie Patterson, M.D. 215

16 Life Issues of Adolescents and Adults with Down Syndrome / Dennis E. McGuire, Ph.D., Brian A. Chicoine, M.D. 221

17 Health care Guidelines for Individuals with Down Syndrome

1999 Revision / William I. Cohen, M.D. 237

Part VI Research

18 Sequencing of Chromosome 21/The Human Genome Project / David Patterson, Ph.D. 249

19 Nonconventional Therapies for Down Syndrome: A Review and Framework for Decision Making / W. Carl Cooley, M.D. 259

20 The Genetic Origins of Cognition and Heart Disease in Down Syndrome / Julie R. Korenberg, Ph.D., M.D., Gillian Barlow, Ph.D., Lora S. Salandanan, B.S., Pranay Bhattacharyya, B.S., Xiao-Ning Chen, M.D., Gary E. Lyons, Ph.D. 275

21 The Origin and Etiology of Trisomy 21 / Terry Hassold, Ph.D., Stephanie Sherman 295

Part VII Psycho-Social Issues

22 Building Relationships/Social and Sexual Development / Leslie Walker-Hirsch, M.Ed. 305

23 Food, Feeding, and Family: On the Road to Healthy Lifestyles / Joan E. Medlen, R.D., L.D. 317

24 Down Syndrome and Autistic Spectrum Disorders / George T. Capone, M.D. 327

Part VIII Education/Inclusion

25 Inclusion: Welcoming, Valuing, and Supporting the Diverse Learning Needs of All Students in Shared General Education Environments / Richard A. Villa, Ed.D., Jacqueline Thousand, Ph.D. 339

26 Positive Behavioral Supports: Creative Supportive Environments at Home, in Schools, and in the Community / Hank Edmonson, M.Ed., Ann Turnbull, Ed.D 357

27 Postsecondary Education / Phyllis Jacks, Ed.D. 377

28 Assistive Technology and Developmental Disabilities / Joseph F. Wallace, Ph.D. 381

Part IX Communication, Math, and Language Skills

29 Starting Out: Speech and Language Intervention for Infants and Toddlers with Down Syndrome / Libby Kumin, Ph.D., CCC-SLP 395

30 Maximizing Speech and Language in Children and Adolescents with Down Syndrome / Libby Kumin, Ph.D., CCC-SLP 407

31 Liberation from Traditional Reading and Math Teaching Methods and Measurements / Patricia Logan Oelwein, M.Ed. 421

Part X Turning the Vision into Reality

32 Turning the Vision into Reality / Andrea Lack, M.S.W., C.S.W. 439.

Notes:

Includes bibliographical references and index.

ISBN:

0471418153

OCLC:

48958643