Self-advocacy in the lives of people with learning difficulties : the politics of resilience / Dan Goodley.

Format:

Book

Author/Creator:

Goodley, Dan, 1972-

Series:

Disability, human rights, and society

Language:

English

Subjects (All):

Mentally ill--Political activity--Great Britain.

Mentally ill.

Political participation.

Self-help groups.

Discrimination against people with disabilities.

Great Britain.

Discrimination against people with disabilities--Great Britain.

Self-help groups--Great Britain.

Physical Description:

xiv, 267 pages : illustrations ; 23 cm.

Place of Publication:

Buckingham [England] ; Philadelphia : Open University, 2000.

Contents:

2 Self-advocacy and people with learning difficulties 6

The history of the self-advocacy movement 8

Understanding the self-advocacy group 15

Questions about self-advocacy: where does this leave us? 24

The need for a contemporary appraisal 25

3 Self-advocacy, impairment and the social model of disability 26

'The tragic person with disabilities': an individual model of disability 26

'The disabled self-advocate': the social model of disability 31

Impairment difficulties: towards an 'inclusive' social model of disability 35

An 'inclusive' social model of disability and an appraisal of self-advocacy 44

4 Researching self-advocacy 46

Storytelling the impact of self-advocacy 47

The informants: 'top self-advocates' 50

Reflections on the doing of life story research 52

Analysis of life stories 61

Self-advocacy groups in action 62

The four groups 66

Analysis of ethnography 70

Part II Living self-advocacy 77

5 Five life stories of 'top self-advocates' 79

Jack Downer: 'Ask self-advocates' 79

Lloyd Page: 'Go for it' 83

Joyce Kershaw: 'Raise your voice and not be frightened' 88

Anya Souza: 'It's not Down's syndrome, it's up syndrome' 96

Patrick Burke: 'It is true. I know it is' 104

6 Learning from life stories 112

Pre self-advocacy group days: the making of a self-advocate 112

Being in self-advocacy groups: coming out as a self-advocate 119

Learning from experience: expert advice on self-advocacy 126

Reflections: life stories, the self-advocacy group and resilience 130

Part III Self-advocacy in action 133

7 Inside self-advocacy groups: typologies and dynamics 135

Introducing the appraisal 136

Models of self-advocacy 136

The Centre Group: service-based self-advocacy 138

The Social Group: the merging of independence and professionalism 146

The Advocacy-supported Group: divisional links 155

The Independent Group: professional self-advocacy 162

Conclusions: dynamics over typologies 171

8 Across self-advocacy groups: support and models of disability 174

The advisor role: interventions and discourses of disability 174

Inclusive and exclusive support: individual and social models of intervention 178

'Advisor-centred' versus 'self-advocate-centred' interventions 178

'Deficit' versus 'capacity' interventions 181

'Talking over' versus 'talking with' 184

'Expertise' versus 'experience' 186

'Missing the point(s)' versus 'addressing the point(s)' 188

Not just advising: self-advocates supporting one another 190

Conclusion: conceptualizing support in practice 195

Part IV Self-advocacy revisited 197

9 Conclusions: the politics of resilience 199

Making analytical connections 200

Issues for the future 207

Critical reflections on this study: theory, activism and commodities in disability research 213

Appendix 1 Introductory booklet for narrators 220

Appendix 2 Collaborative life story of Joyce Kershaw 224

Appendix 3 Introductory booklet for groups 232.

Notes:

Includes bibliographical references (pages [236]-257) and index.

ISBN:

0335205275

0335205267

OCLC:

43894531