1 option
The 36-hour day : a family guide to caring for persons with Alzheimer's disease, related dementing illnesses, and memory loss in later life / Nancy L. Mace, Peter V. Rabins.
Holman Biotech Commons RC523 .M3 1991
By Request
- Format:
- Book
- Author/Creator:
- Mace, Nancy L.
- Language:
- English
- Subjects (All):
- Alzheimer's disease--Patients--Home care.
- Alzheimer's disease.
- Senile dementia--Patients--Home care.
- Senile dementia.
- Alzheimer Disease.
- Dementia--therapy.
- Alzheimer Disease--therapy.
- Home Nursing.
- Medical Subjects:
- Alzheimer Disease.
- Dementia--therapy.
- Alzheimer Disease--therapy.
- Home Nursing.
- Physical Description:
- xxi, 329 pages ; 24 cm
- Edition:
- Revised edition.
- Other Title:
- Thirty-six hour day.
- Place of Publication:
- Baltimore : Johns Hopkins University Press, [1991]
- Contents:
- 1 Dementia 1
- What Is Dementia? 5
- The Person with a Dementing Illness 7
- Where Do You Go from Here? 10
- 2 Getting Medical Help for the Impaired Person 13
- The Evaluation of the Person with a Suspected Dementia 13
- Finding Someone to Do an Evaluation 17
- The Medical Treatment and Management of Dementia 18
- The Physician 18
- The Nurse 19
- The Social Worker 20
- 3 Characteristic Problems of Dementia 22
- The Brain, Behavior, and Personality: Why People with Dementia Do the Things They Do 22
- Caregiving: Some General Suggestions 26
- Memory Problems 28
- Overreacting, or Catastrophic Reactions 29
- Combativeness 34
- Problems with Speech and Communication 34
- Problems the Impaired Person Has in Making Himself Understood 35
- Problems the Impaired Person Has in Understanding Others 37
- Loss of Coordination 40
- Loss of Sense of Time 43
- Symptoms That Are Better Sometimes and Worse at Other Times 44
- 4 Problems in Independent Living 46
- When a Person Must Give Up a Job 47
- When a Person Can No Longer Manage Money 48
- When a Person Can No Longer Drive Safely 49
- When a Person Can No Longer Live Alone 53
- When You Suspect that Someone Living Alone Is Getting Confused 53
- What You Can Do 55
- Moving to a New Residence 56
- 5 Problems Arising in Daily Care 60
- Hazards to Watch For 60
- In the House 61
- Outdoors 63
- In the Car 64
- Smoking 64
- Hunting 64
- Highways and Parking Lots 65
- Nutrition and Mealtimes 65
- Meal Preparation 65
- Problem Eating Behaviors 66
- Mealtimes 67
- Malnutrition 70
- Weight Loss 70
- Choking 71
- When to Consider Tube Feeding 72
- Exercise 74
- Recreation 75
- Meaningful Activity 78
- Personal Hygiene 78
- Bathing 80
- Dressing 81
- Grooming 82
- Oral Hygiene 83
- Bathroom Supplies 84
- Incontinence (Wetting or Soiling) 85
- Urinary Incontinence 85
- Bowel Incontinence 88
- Cleaning Up 89
- Problems with Walking and Balance; Falling 90
- Becoming Chairbound or Bedbound 92
- Wheelchairs 93
- Changes You Can Make at Home 94
- Should Environments Be Cluttered or Bare? 96
- 6 Medical Problems 99
- Pain 100
- Falls and Injuries 101
- Pressure Sores 101
- Dehydration 102
- Pneumonia 102
- Constipation 103
- Medications 104
- Dental Problems 106
- Vision Problems 107
- Hearing Problems 108
- Visiting the Doctor 109
- If the Ill Person Must Enter the Hospital 110
- Seizures, Fits, or Convulsions 112
- Jerking Movements (Myoclonus) 113
- The Death of the Impaired Person 113
- The Cause of Death 113
- Dying at Home 114
- Hospice 115
- Dying in the Hospital or Nursing Home 115
- When Should Treatment End? 115
- What Kind of Care Can Be Given at the End of Life? 116
- 7 Problems of Behavior 119
- The Six R's of Behavior Management 119
- Concealing Memory Loss 121
- Wandering 122
- Reasons Why People Wander 122
- The Management of Wandering 124
- Sleep Disturbances and Night Wandering 129
- Worsening in the Evening 131
- Losing, Hoarding, or Hiding Things 133
- Rummaging in Drawers and Closets 133
- Inappropriate Sexual Behavior 134
- Repeating the Question 136
- Repetitious Actions 137
- Distractibility 137
- Clinging or Persistently Following You Around 138
- Complaints and Insults 139
- Taking Things 142
- Forgetting Telephone Calls 142
- Demands 143
- Stubbornness and Uncooperativeness 145
- When the Sick Person Insults the Sitter 146
- Using Medication to Manage Behavior 147
- 8 Problems of Mood 148
- Depression 148
- Complaints about Health 149
- Suicide 150
- Alcohol or Drug Abuse 150
- Apathy and Listlessness 151
- Remembering Feelings 151
- Anger and Irritability 152
- Anxiety, Nervousness, and Restlessness 153
- False Ideas, Suspiciousness, Paranoia, and Hallucinations 155
- Misinterpretation 155
- Failure to Recognize People or Things (Agnosia) 156
- "My Mother Is Coming for Me" 157
- Suspiciousness 158
- Hiding Things 160
- Delusions and Hallucinations 161
- Having Nothing to Do 162
- 9 Special Arrangements If You Become III 164
- In the Event of Your Death 165
- 10 Getting Outside Help 168
- Help from Friends and Neighbors 168
- Finding Information and Services 169
- Kinds of Service 171
- Having Someone Come into Your Home 172
- Adult Day Care 172
- Day Hospitals 174
- Short-Stay Residential Care 174
- Planning in Advance for Home Care or Day Care 174
- When the Confused Person Rejects the Care 175
- Your Own Feelings about Getting Respite for Yourself 177
- Locating Resources 179
- Paying for Care 181
- Should Respite Programs Mix People Who Have Different Problems? 183
- Determining the Quality of Services 183
- Research and Demonstration Programs 185
- 11 You and the Impaired Person as Parts of a Family 186
- Changes in Roles 188
- Understanding Family Conflicts 191
- Division of Responsibility 192
- Your Marriage 194
- Coping with Role Changes and Family Conflict 194
- A Family Conference 196
- When You Live out of Town 198
- When You Are Not the Primary Caregiver, What Can You Do to Help? 199
- Caregiving and Your Job 200
- Your Children 201
- Teenagers 203
- 12 How Caring for an Impaired Person Affects You 205
- Emotional Reactions 205
- Anger 206
- Embarrassment 209
- Helplessness 210
- Guilt 210
- Laughter, Love, and Joy 213
- Grief 214
- Depression 215
- Isolation and Feeling Alone 216
- Worry 216
- Being Hopeful and Being Realistic 217
- Mistreating the Confused Person 217
- Physical Reactions 218
- Fatigue 218
- Illness 219
- Sexuality 220
- If Your Spouse Is Impaired 220
- If Your Impaired Parent Lives with You 222
- The Future 222
- You as a Spouse Alone 223
- When the Person You Have Cared for Dies 225
- 13 Caring for Yourself 226
- Take Time Out 227
- Give Yourself a Present 228
- Friends 228
- Avoid Isolation 229
- Find Additional Help If You Need It 230
- Recognize the Warning Signs 230
- Counseling 232
- Joining with Other Families: The Alzheimer's Association 234
- Support Groups 235
- Excuses 236
- Advocacy 237
- 14 For Children and Teenagers 239
- 15 Financial and Legal Issues 243
- Your Financial Assessment 243
- Potential Expenses 244
- Potential Resources 245
- Where to Look for the Forgetful Person's Resources 247
- Legal Matters 249
- 16 Nursing Homes and Other Living Arrangements 253
- General Rules for Evaluating a Care Facility 253
- Moving with a Confused Person 254
- Types of Living Arrangements 255
- Nursing Homes and Assisted Living Facilities 258
- Paying for Care 260
- Payment Sources 261
- Establishing the Need for Medical Care 267
- The Mental Health Screening Requirement 268
- Finding a Home or Other Facility 268
- Nursing Home and Assisted Living Programs that Specialize in Dementia Care 276
- Moving to a Nursing Home 277
- Adjusting to a New Life 279
- Visiting 279
- Your Own Adjustment 281
- When Problems Occur in the Nursing Home 283
- Sexual Issues in Nursing Homes 284
- The Department of Veterans Affairs (VA) 286
- State Mental Hospitals 286
- 17 Brain Disorders and the Causes of Dementia 288
- Dementia 288
- Dementia Associated with Alcohol Abuse 290
- Alzheimer Disease 290
- Multi-Infarct or Vascular Dementia 292
- Lewy Body Dementia 292
- The Frontotemporal Dementias, Including Pick Disease 293
- Depression 293
- Binswanger Disease 294
- AIDS 294
- Other Brain Disorders 295
- Delirium 295
- Senility, Chronic Organic Brain Syndrome, Acute or Reversible Organic Brain Syndromes 296
- Anoxia or Hypoxia 297
- 18 Research in Dementia 298
- Understanding Research 299
- Bogus Cures 300
- Research in Multi-Infarct Dementia and Stroke 301
- Research in Alzheimer Disease 301
- Structural Changes in the Brain 301
- Brain Cell Structure 301
- Neurotransmitters 302
- Abnormal Proteins 302
- Transplants of Brain Tissue 303
- Drug Studies 304
- Metals 304
- Viruses 304
- Immunological Defects 305
- Head Trauma 305
- Epidemiology 305
- Down Syndrome 306
- Old Age 306
- Heredity 306
- Gender 308
- Promising Clinical and Research Tools 308
- Keeping Active 309
- The Effect of Acute Illness on Dementia 310
- Research into the Delivery of Services 310
- Protective Factors 311
- Appendix 3. Locating Your State Office on Aging and State Nursing Home Ombudsperson 322
- Appendix 4. Nursing Home Residents' Rights 328.
- Notes:
- Includes bibliographical references.
- ISBN:
- 0801840333
- 0801840341
- OCLC:
- 22508083
The Penn Libraries is committed to describing library materials using current, accurate, and responsible language. If you discover outdated or inaccurate language, please fill out this feedback form to report it and suggest alternative language.